| |
References
The literature we have drawn on for this study reflects the complex nature of this field of inquiry, including the history of FMD in the UK; local and government sponsored inquiries; health related FMD publications; disaster studies; clinical and other literatures on trauma and Post Traumatic Stress Disorder; rural health studies. Within ‘FMD literature’ we also reviewed some of the large body of textual and other cultural products which have arisen since the epidemic but are not referenced here. We have also drawn on the methodological literature relating to the use of diaries in health research.
Alexander, D.A. & Wells, A. (1991) Reactions of Police Officers to Body-Handling after a Major Disaster, A Before and After Comparison. British Journal of Psychiatry, 159, 547-555.
Allan, S. (2003) Arts residency project for rural primary schools - in the areas of Cumbria hit hardest by the 2001 foot and mouth epidemic. Eden Arts, April 2003.
Anderson Inquiry (2002) ‘Foot and mouth disease 2001: Lessons Learned Inquiry’ Chair, Dr Iain Anderson, Cabinet Office.
Bailey C, Convery I., Baxter J., Mort M. (2003) ‘Narratives of trauma and on-going recovery: the UK 2001 foot and mouth disease epidemic’ AutoBiography (X1) No 1&2 37-46
Barnes, D. (1996) An analysis of the grounded theory method and the concept of culture, Qualitative Health Research 6 (3), 429, 41.
Bennett, K. & Phillipson, J. (2002) The effects on village, business and household life in the Northern Fells. In, Coping with Crisis in Cumbria: the consequences of foot and mouth disease, (Newcastle, Centre for Rural Economy).
Bloomfield, B. (1991) The Role of Information Systems in the UK National Health Service: Action at a Distance and the Fetish of Calculation, Social Studies of Science, Vol 21, 701-734.
British Medical Journal Letters (2001/2002):
Gibson, G. (2001) Human consequences of foot and mouth disease are more than described British Medical Journal 322:1491 (16 June).
Hunter, D. (2001) Public health concerns grow over foot and mouth outbreak described British Medical Journal 2001;322:881 ( 14 April ).
Mayor, S (2001) UK investigates possible human cases of foot and mouth disease British Medical Journal 322:1085.
Nicoll, A. Wilson, D. Calvert, N. Borriello, P. (2001) Managing major public health crises British Medical Journal 323:1321-1322 (8 December).
Petrie, K. & Wessely, S (2002) Modern worries, new technology, and medicine, British Medical Journal 324:690-691 (23 March)
Weldon, F. (2002) Why scare stories are good for the NHS British Medical Journal 324:9284 (20 April).
Bush, J. Thompson C, Phillimore, P. and Pless-Mullol, T. (2002) Perception and communication of risks to health from foot and mouth carcass disposal sites, presented at the Institute for Health Research, University of Lancaster, May 2002.
Bush J, Pless-Mulloli ,T. Phillimore, P. Thompson, C. (2003) "If they"d just asked for some local knowledge...": a critical examination of risk communication practices in the context of foot and mouth carcass disposal sites in the UK, Epidemiology, 14 (5) S119.
Carlisle City Council Health Overview & Scrutiny Committee (2003), Evidence at hearings of the committee on Post Foot and Mouth Disease Environmental and Health Matters Subject Review/Inquiry: 28th October 2003; 23rd November 2003; 17 December 2003.
Charmaz, K. (1997) ‘Identity Dilemmas of Chronically Ill Men’ in Strauss A Corbin J (eds) Grounded Theory in Practice (Thousand oaks, California: Sage).
CN Research (2000) Health Care Opinion Survey, March 2000, on behalf of the North Cumbria Health Care Authority.
Coote, A. & Lenaghan, J. (1997) Citizens Juries: Theory into Practice. London, IPPR.
Countryside Agency (2001) State of the Countryside, Countryside Agency, April 2001 www.countryside.gov.uk accessed 29.04.04.
Cumbria County Council (2001) School Absences Data, 2001 Cumbria County Council
Cumbria Foot & Mouth Disease Inquiry (2002). Cumbria Foot and Mouth Inquiry Report. Cumbria County Council.
Curry, D. (2002) Farming and Food a sustainable future. Report of the Policy Commission on the Future of Farming and Food (The Curry Report). London: H.M.S.O, 2002 (Chairman: Sir Donald Curry).
Deaville et al (2003), The impact of the foot and mouth outbreak on mental health and well being in Wales, Report for Welsh Assembly Government, Institute of Rural Health, Gregynog, Wales.
Department for Environment, Food & Rural Affairs (DEFRA) (2003) Foot and mouth contingency plan (version 3.1, December 2003)
http://www.defra.gov.uk/corporate/consult/fmd-contingency - accessed January 2004.
DEFRA: FMD Data Archive, data warehouse. http://footandmouth.csl.gov.uk
Denzin, N. (1989) Interpretive Interactionism London, Sage.
Devon Foot & Mouth Inquiry (2001) Crisis and Opportunity. Final Report. Chaired by Professor Ian Mercer CBE Devon Books, www.devon.gov.uk
Dolan, P. (2000) Affected Age on Health State Valuations, Journal of Health Services Research and Policy (5) 1, 17-21.
Donaldson, A P. Lowe, P. & Ward, N. (2002) Virus-Crisis-Institutional Change: The Foot and Mouth Actor Network and the Governance of Rural Affairs in the UK, Sociologica Ruralis, Vol 42, No 3, p 201-214.
Dowswell, T. Harrison, S. Mort, M. & Lilford, R. (1997), Health Panels – A Survey. Final report of a research project funded by NHS Executive (Northern & Yorkshire) Project No HSR 015. Nuffield Institute for Health, Leeds University.
European Parliament’ Temporary Committee on Foot-and-Mouth. PE 322.219
European Parliament resolution on measures to control foot-and-mouth disease in the European Union in 2001 and future measures to prevent and control animal diseases in the European Union (2002/2153(INI)) P5_TA-PROV(2002)0614. Foot-and-mouth disease: 2001 crisis
Elliot, P. (1997) The Use of Diaries in Sociological Research on Health Experience, Sociological Research Online, vol. 2, no. 2.
EQ-5D study carried out in Cumbria in 2000 (commissioned by the former North Cumbria Health Authority Public Health Unit).
Erikson, K. (1976) In the Wake of the Flood. George Unwin and Allen, London, UK.
Erikson, K. (1991). Notes on Trauma and Community. American Imago, Vol. 48, No. 4, p.455-472.
Erikson, K. (1994). A New Species of Trouble. New York: W.W. Norton & Company.
EuroQol Group (1998) EQ-5D User Guide – EuroQol, version B 1998.
Franks, J. (2002) Farming after Foot and Mouth. University of Newcastle upon Tyne, Centre for Rural Economy Working Paper 66.
Gerrard, C. (1998) Farmers’ occupational health: cause for concern, cause for action Journal of Advanced Nursing, 28, 155-63.
Gesler, W. (1993) Therapeutic landscapes - theory and a case study of Epidauros, Greece. Environment and Planning D, Vol.11, No.2, pp.171-189
Giner-Sorolla R, Espinosa P & Brown, R, (2004) ‘Saying sorry can win support’, presentation at British Psychological Society, Social Psychology Pre-Conference Workshop. Imperial College, London, 14 April 2004.London.
Glaser, B. (1992) Basics of grounded theory analysis Mill Valley CA Sociological Press.
Graham, C. (2001). Foot and Mouth Heart and Soul A collection of personal accounts of the foot and mouth outbreak in Cumbria 2001 Small Sister.
Gubrium, J. Holstein, J. (1990) What is family? London, Mayfield.
Harrison, S. & Mort, M. (1998) Which Champions, Which People? Public and user involvement in health care, Social Policy & Administration, Vol 32, 60-70.
Hart, E. & Bond, M. (1995). Action Research for Health and Social Care: A Guide to Practice. OU Press.
Hawton, K. Simkin, S. Malmberg, A. Fagg, J. & Harriss, L. (1998) Suicide and Stress in Farmers, Department of Health Report, London Stationery Office.
Hayes, N. (2000) Doing Psychological Research: gathering and analysing data. Open University Press.
Homan, R. (1991) The Ethics of Social Research London: Longman.
Howorth, C. (1999). Rebuilding the Local Landscape. Ashgate, Aldershot.
Ingold, T. (1992) Culture and the perception of the environment, in (ed.) Croll, E. & Parkin, D. Bush Base: Forest Farm. Culture, Environment and Development. London: Routledge.
Ingold, T. (2000) The Perception of the Environment: Essays on Livelihood, Dwelling and Skill. London: Routledge.
Jowell, T. (2000) Community development and the Government’s policy agenda, in Ashton, P. and Hobbs, A. (eds) Communities Developing for Health, Health for All Network.
Kashefi E & Mort M. (2004), Grounded Citizens Juries: a tool for health activism? Health Expectations, 7, 1-13.
Kind, P. Dolan, P. Gudex, C. Williams, A. (1998) Variations in population health status: results from a United Kingdom national questionnaire survey, British Medical Journal 316: 736 - 741.
Large, D M, Messersmith R, Aldred A & Tiplady P, Effects of Diabetes Control of the Foot and Mouth Disease Epidemic in North Cumbria, 2001, (In preparation). Carlisle, Cumberland Infirmary
Lowe, P. Edwards, S. and Ward, N. (2001). The Foot and Mouth Crisis: Issues for Public Policy and Research University of Newcastle upon Tyne, Centre for Rural Economy Working Paper 64.
Mallinson S, (2001) Listening to Respondents: A Study of Standardised Health Measurement, Unpublished PhD thesis, Institute for Public Health Research & Policy, University of Salford, UK.
Mallinson, S. (2002) Listening to respondents: a qualitative assessment of the Short-Form 36 Health Status Questionnaire.
McFarlane, A.C. (1988) Relationship between psychiatric impairment and a natural disaster: the role of distress. Psychology and Medicine, Vol. 18, 129-39.
McFarlane, A.C. (2000). Posttraumatic stress disorder: a model of the longitudinal course and the role of risk factors. Journal of Clinical Psychiatry, 61 Supplement 5, 15-20.
McLean I, & Johnes M, (2000) Aberfan: Government and Disasters, Cardiff, Welsh Academic Press.
McMillen J, Smith E & Fisher R (1997) Perceived benefit and mental health after three types of disaster Journal of Consulting and Clinical Psychology, Vol 65, No 5 733-739.
Meth, P. (2003) Entries and Omissions: using solicited diaries in geographical research Area (35) 2 195- 205.
Ministry for Agriculture, Fisheries and Food (MAFF) (1999) A New Direction for Agriculture England, Rural Development Plan London: MAFF.
Morse, J, (2003) Innovative Inquiry, Editorial, Qualitative Health Research, Vol 13, No 4, 447-448.
National Audit Office (2002) The 2001 Outbreak of Foot and Mouth Disease, Report by the Comptroller and Auditor General. The Stationery Office, London http://www.nao.gov.uk/publications/nao_reports/01-02/0102939.pdf
North, C. & Hong, B.A. (2000). Project CREST: a new model for mental health intervention after a community disaster. American Journal of Public Health. Vol. 90, pp.1057 – 1058.
North Cumbria Health Task Group - Health and Social Care Action Group. Minutes 17 April 2001 to 4 January 2002
North Cumbria Public Health/Health Development (2002) North Cumbria Mental Health Promotion Strategy, February, NHS, Cumbria
Peak District Rural Deprivation Forum (2004) Hard Times: A research report into hill farming and farming families in the Peak District, Peak District Rural Deprivation Forum
Perrow, C (1999) Normal Accidents, Princeton, Princeton University Press.
Prempeh, H. Smith, R & Muller B, (2001) Foot and mouth disease: the human consequences British Medical Journal 322:565-566.
Rural White Paper (2000) Our Countryside: The Future – A Fair Deal for Rural England, The Stationery Office.
Sideris, T. (2003). War, gender and culture: Mozambican women refugees. Social Science & Medicine, Vol. 56, pp.713–724.
Stanley, L. Wise, S. (1993) Breaking out again: feminist ontology and epistemology London, Routledge.
Strauss, A Corbin, J (1994) Grounded theory methodology: an overview. In (eds) Denzin, N. Lincoln, Y. Handbook of Qualitative Research Thousand Oaks CA, Sage, 273-285.
Strauss, A Corbin J (1998). Basics of Qualitative Research Techniques and Procedures for Developing Grounded Theory (2nd edition) Sage.
Syed, A.A. Tiplady, P. Large, D. M. (2002) Human Consequences of foot and mouth disease: a diabetes perspective Diabetes Today 5 (3) 75-76.
Taylor, L.J. (2004) Innovation in Diabetes Care: A "Telephone Ethnography", Unpublished Masters Dissertation, Institute for Health Research,
51¸£Àû, UK
The Northumberland Committee Report (1968) Report of the Committee of Inquiry on Foot-and-Mouth Disease 1968, chaired by the Duke of Northumberland (Cmnd 3999), HMSO.
The Royal Society (2002). Inquiry into Infectious Diseases in Livestock. Plymouth, UK. (Chaired by Sir Brian Follett, 2002)
Tideswell Health Survey (2002) Farm Out Health Project, High Peak and Dales PCT.
Turnbull, G.J. (1998) A review of post-traumatic stress disorder. Part I: Historical development and classification. Injury 9, 87-91.
Somé, S. and McSweeney, K. 1996. Assessing sustainability in Burkina Faso. ILEIA Newsletter. ETC Leusden, The Netherlands.
Verbrugge, L. M. (1980) Health Diaries Medical Care Vol. 18, p. 73 - 95.
Weldon, F. (2002) Why scare stories are good for the NHS British Medical Journal 324:9284 (20 April).
Wilson, K. Therapeutic landscapes and First Nations peoples: an exploration of culture, health and place, Health & Place, Vol. 9, pp. 83–93.
Wood, J. (2004) Rural Health & Healthcare: a North West perspective, Public Health Information Report for the North West Public Health Observatory, Lancaster, Institute for Health Research. www.nwpho.org.uk/reports/ruralhealth.pdf
Woods, A. (1999) From occupation hazard to animal plague: Foot and mouth disease in Britain, 1839-1884, Unpublished MSc Thesis, Manchester University.
Wynne, B. (1996) ‘May The Sheep Safely Graze? A Reflexive View of the Expert-Lay Knowledge Divide’ from Scott Lash, Bronislaw Szerszyinski and Brian Wynne eds. Risk, Environment and Modernity: Towards a New Ecology London: Sage 45-83.
Yehuda, R., McFarlane, A.C. & Shalev, A.Y. (1998) Predicting the development of PTSD from the Acute Response to a Traumatic Event. Biological Psychiatry, 44, 1305-1313.
Young, A (1995) The Harmony of Illusions: Inventing Posttraumatic Stress Disorder, Princeton: Princeton University Press, 1995.
Zimmerman, D. H. & Wieder, D. (1977) The Diary-Interview Method Urban Life, (5)4 479 - 498.
|
|
|